Thursday, May 2, 2013

The Rough Landing and a Journey


On this day a year ago, I crash landed into the world of chronic illness. I had been sick for a long time prior, but the anaphylactic reaction that took place on May 2, 2012 flipped my world upside down entirely, and I haven’t been able to right it since. I easily recall the emotional trauma of those early days. I remember thinking my life was over, that if I didn’t die I might want to. Today, I smile wisely and compassionately at the scared, broken young woman I was a year ago because the woman I am today knows the girl’s life was far from over. Rather, she was standing at the threshold of something new entirely, something the girl had secretly longed for her entire life--adventure. 

I have always been a girl with a plan. Those plans usually involve safety and comfort, so I was an unlikely, ill-prepared candidate for an adventure as adventures are never safe or comfortable. My first steps were as awkward and faltering as those of a newborn fawn. Every time I finally found my stride, the terrain would inevitably change, forcing me to adjust. Again. At times, I have forgotten my destination. When I manage to remember my heading, I forget to enjoy the journey. I am fairly certain even the pre-There and Back Again Bilbo Baggins would have been a more promising candidate for this sort of thing than me, but alas--this is my road to haul......minus the cool factor of elves, dwarves, hobbits and Gandalf.

Slowly, I am learning that "promising" isn't on the list of prerequisites for the reluctant adventurer. As a matter of fact, the only thing necessary on an unexpected journey is the decision to take a step. And then another. After that, it is all about a metamorphosis over which the adventurer has little to no control.

Truly, everything has changed. From my appearance to my diet to my habits to my home (we bought a farm!), I am not who I once was.


 June 2012
 August 2012
 January 2013
April 2013
(A mask is now a necessary accessory for all public outings.)


Much of my outward beauty has faded over the past year, but that just happens on adventures. For awhile, you care and then you realize that other things are more important--like putting your energy into taking care of sick babies, cooking dinner for hungry co-adventurers, or foraging for healing herbs down by the creek.





As I am an Hermione at heart, I have done a ton of reading and research to plot my best course. Along the way, I have picked up a lot of tools to add to my arsenal. Many of you probably consider my ways very quacky. That's okay. Thank God we are all different! But don't knock it because it's weird. Remember that all adventurers possess a certain amount insanity! Also remember that life has a way of making you eat your words.....and thoughts. I may or may not be speaking from personal experience.

I have acquired new skills, and continue to acquire them all the time. I can cook! I can ferment! I can make my own hygiene products! My co-adventurer husband (aka Superman) is learning to farm! This summer, I will have to learn to harvest, can, preserve, blanch and freeze. Bring it!

A year ago, I was afraid all of the time.....of everything. Those days are over. I still feel fear, but usually only when wasps are involved. And even I have recently stood my ground with a wasp, armed with nothing but a flimsy fly-swat and poor coordination. Months ago, the pain and fatigue (which I have fondly named Mildred and Gertrude) I live with every day kept me from doing things I wanted to do. No more. Hunger continues to be a formidable foe. I still become quite grumpy when hungry, but I have learned to live without monster cookies and gluten-free donuts, which is something. I don't even miss them anymore. Give me carrot "fries," chicken soup and chocolate pudding made with avocados and dates any day of the week! Herbal teas are also becoming a favorite of this former coffee drinker.

Several years ago, I would have scorned the life I live today. If someone had told me that I would become a raging hippy (minus the LSD and free love) who did little else besides stay home, cook, watch plants grow and take care of children, I would have laughed. Or cried. I used to think people like me were very "woo-woo" and boring. And maybe we are. But the point is that I had dreams of being accepted, loved and known for something, and I am none of these things. I fit in with very few people. While I am loved deeply, it is only by a few and many of these are scattered here, there and yonder, hours away from my little life on Jubilee Farm. Because I have disappeared from all of my old social circles, I am largely forgotten outside of social media. At first, my new place in society made me sad, but then I thought of Bilbo. In the Shire, he fit in. He was known and even loved, but the moment he left with the dwarves he fit in nowhere, was known by few and was loved by even fewer. Yet what he did mattered. On this journey, I am learning to embrace the call of being vital to a few rather than optional to many.



The journey has not been easy. I have often despaired. The thrill of adventure has waned, and I feel myself lost in the dark, soaking wet by a never-ending downpour without necessary equipment or adequate rations. The words, "this is too much," have often come to mind recently.

I am not without good company. Many adventurers have despaired along the way. Actually, Good Company is what separates me from all of my favorite storybook travelers. A friend shared these words on Facebook the other day--

"When you say, 'I just can't handle______,' you're preaching to yourself an anti-gospel that forgets the presence and power of Jesus."--Paul David Tripp

Can I get an "ouch!?" Things have been hard. While I am better in some ways, I am sicker in others. I emotionally suffer as those I love dearly physically suffer. There have been disappointments and setbacks and sicknesses and near death experiences, but the last time I checked, Jesus Christ carries the heavy end of my cross. If a situation seems too hard,  I am likely trying to manage it rather than handing it over as I ought. I have forgotten the ultimate Co-Adventurer and the power He possesses. You see, when I'm walking with Him, nothing seems hard. Not really. 

"Therefore since we are surrounded by so great a cloud of witnesses, let us lay aside every weight and the sin which so easily ensnares us, and let us run with endurance the race set before us, looking unto Jesus, the author and perfecter of our faith, who for the joy set before Him [you and me] endured the cross." --Hebrews 12:1-2

I am a year into fairly extreme illness. Endurance is vital. The only way I am going to make it is if I look past the temporal mile marker of healing, straight into the eyes of Jesus which are blazing with unfathomable passion for me. He will go to all lengths necessary to get me into His arms, and He will receive me regardless of my lack of qualifications.

"[God] gives power to the weak, and to those who have no might He increases strength. Even the youths shall faint and be weary, and the young men shall utterly fall, but those who wait on the Lord shall renew their strength; They shall mount up with wings like eagles. They shall run and not be weary, they shall walk and not faint."--Isaiah 40:29-31
 
Sometimes, I am tempted to look back at the blissful ignorance and ease I once enjoyed, but looking back is worse than useless. It's crippling and sinful. 

"But I press on, that I may lay hold of that for which Christ laid hold of me....forgetting those things which are behind and reaching forward to those things which are ahead. I press toward the goal for the prize of the upward call of God in Christ Jesus."--Philippians 3:12-14

 Lot's wife looked back at the destruction of Sodom and Gomorrah, and was turned into a pillar of salt. Israel, while wandering in the desert, languished at the monotony of manna, and cried out for the comforts of her former slavery in Egypt. Looking back says, "God, I don't like where You are taking me. I don't trust You. I don't believe You." Looking forward says, "I believe in the Promised Land, and I trust You to take me there. I will gladly walk in this desert. It's hot and tiresome, but I will rest in the shadow of Your wings. I will joyfully eat this manna. It is enough because You are enough."

My journey is not haphazard. Every encounter, every bend in the road achieves some purpose unknown to me. It's all a part of my story, predestined by a Perfect Author. Knowing this gives me permission to enjoy meeting ogres along the way. The ogres shape my character, too.

"Rejoice in the process. Growth in grace is gradual over time."--Tim Lane

You know, it's okay if the heroine sheds a few tears along the way. It's okay if she pauses occasionally to ask, "Why?" That's just real life. We aren't called to stuff our emotions any more than we are called to wallow in self-pity. I believe we are instead called to invest our emotions, entrusting them to our Faithful Creator who sees the big picture while expectantly awaiting the return we will receive for doing so. 

While the plot twists before me are unknown and treacherous, my destination is sure.

"Therefore, I run thus: not with uncertainty."--1 Corinthians 9:16

My ultimate enemy--spiritual death--is already defeated. Nothing else truly threatens me. No matter what, I end up in the Everlasting Arms. 

While I am not where I had hoped I would be one full year into my adventure, I soldier on. The Lord has recently blessed me with a second wind, just as I desperately needed it. He does that whole "supplying all my needs" thing pretty well. With an Adventure Buddy like that, I think I'll be just fine. Ogres and all.

Friday, April 19, 2013

A Few More Pieces of the Puzzle

A couple of posts ago, I mentioned that the Lord was leading me to look deeper into the autoimmune nature and genetic origins of my illness. Well, I have been doing just that. My worsening symptoms are helping to spur me on in my quest for information. Thanks to the Lord's direction, what I'm learning and what my doctor is learning, I am beginning to understand why I have been feeling like death warmed over.

As I have mentioned before, I suffer from methyl cycle (MTHFR) genetic defects. While the abnormalities in these genes do not gift a person with an undesirable disease from birth, they do predispose one to ill health. Based on what I am learning in Dr. Connor's book, Help, My Body Is Killing Me, these defects are basically latent genes that can be "turned on" during the course of a person's life, causing a lot of trouble including autoimmune disease. After doing some research, I conclude that I have suffered from methyl cycle defects for most of my life, but I feel I can pinpoint the specific events that fully awoke these sleeping little monsters--allergy shots (and corresponding steroid treatment) and my pregnancies. Dr. Connors explains that once the genes are turned on, they cannot be turned off. However, they can be managed by diet, supplementation and lifestyle alterations. I have a loooooooong way to go before I get to the management state, so for now I am one super-dysfunctional, toxic, autoimmune mess.

On Wednesday of this week, I met with Dr. Yakaboski for a consultation concerning what she learned at the MTHFR genetic conference last weekend. We have not yet received my highly detailed saliva test results via 23andme.com (due within 3 weeks), but based upon the case studies at the conference, she has a few good guesses about which defects I have. We already know that I have the homozygous A1298c defect from the blood tests Dr. Cave ordered back in October. Dr. Yakaboski suspects further defects including CBS and COMT. After two days of intense research, I am certain I have the CBS defect. I could be the poster child for this mutation!

CBS (cystathionine beta-synthase) initiates the trans-sulfuration pathway of the methylation cycle. Its job is to convert homocysteine (an amino acid) into cystathionine (the middle man) and its metabolites down the way, which I assume are very important. Symptoms of a CBS defect include:

  • Elevated urine sulfate level (CHECK! At my last appointment with Dr. Yakaboski, my urine sulfate level was at the highest possible reading of 1600+)
  • Low/normal homocysteine level (CHECK! This was confirmed in the bloodwork ordered by Dr. Cave.)
  • High blood ammonia levels (This has not been confirmed by blood test, but I show physical symptoms of having high blood ammonia including a "fog-like" state of the brain and severe bloating of the lower abdomen.)
  • Intolerance to sulfur containing drugs, supplements and foods (DOUBLE CHECK! Does anyone remember my downward spiral at the beginning of 2012? It was highlighted by several near death experiences with sulfa/sulfur substances.)
  • Adrenal exhuastian (CHECK! The presence of sulfate stimulates the "fight or flight" response, releasing cortisol in the body. The cortisol stress response is a good thing when being chased by a bear. It is life-saving in those kind of situations, but let's face it--I'm not being chased by a bear. Dr. Cave, Dr. Kuehn and Dr. Yakaboski have all three found that my adrenals are exhausted.  Did you know that you can naturally heal adrenal exhaustion by modifying your diet and lifestyle? You can!)
  • Brain fog (CHECK! My brain is so foggy that real life often takes on the characteristics of a dream. It's weird and unhelpful when caring for children and managing a household.)
  • Abnormalities in sugar control (CHECK! I have had blood sugar problems all my life.)
  • Difficulty sleeping (CHECK! CHECK!)
The CBS defect causes methyl cycle "middle men" to be turned into ammonia, more ammonia than the body is prepared to handle. When an overabundance of ammonia is present, BH4 (an essential cofactor of amino acid hydroxlase enzymes) is depleted. For every one molecule of ammonia, it takes two molecules of BH4 to metabolize it. So individuals with the CBS defect are BH4 deficient. Now, BH4 is muy importante. It is responsible for making the neurotransmitters dopamine, serotonin and norepinephrine. A BH4 deficiency also prevents arginine (an amino acid) from converting into nitric oxide, which is essential for neurological, psychological and cardiovascular health. Instead, the arginine is converted into free radicals (superoxide and peroxynitrite) which cause immunodeficiency, toxicity, and cell death. Funny story--I just told Brandon a few days ago that I felt as though every cell in my body was slowly dying.

After learning all of this fascinating information, my first thought was, "Where can I find a BH4 supplement?" But it isn't that simple. Until the other methyl cycle pathways are working properly, one should not begin BH4 supplementation. If a long-closed pathway is suddenly opened, a bad detox reaction will result. Detox reactions can be severe, and should be avoided when possible. Healing methyl cycle pathways is a process and a slow one at that.

I can't change my DNA, but I can change what I feed it. Step 1 of the healing process will be to change my diet.....again. If you have known me for any length of time, you will hardly believe the next words you read--I am doing away with meat. For awhile, anyway. It turns out that by restricting my animal protein, I can reduce my ammonia burden, preserving BH4, which will in turn allow my amino acids to begin making neurotransmitters and nitric oxide properly again. Going (mostly) vegetarian will also help my body achieve a more alkaline state, which is important. My body's environment is currently very acidic, a state in which disease of all kinds thrives.

In addition to avoiding meat as much as possible, I will also begin eating a diet low in sulfur/free thiols. Until now, I have been eating mostly high sulfur foods. Until yesterday, I have eaten three or more eggs every morning for breakfast, meats and high sulfur veggies for lunch and dinner, chocolate almost every day and as much farm fresh goat milk as I pleased. All of those foods are on the "High in Free Thiols" list. My eating habits have a lot to do with my increasing fatigue, state of yuckiness, depression, and sensitivity to toxins, but I had no way of knowing that until Wednesday. Changing my diet so drastically requires baby steps. For now, I will eliminate garlic altogether and reduce the number of eggs and the amount of high sulfur vegetables I eat. These vegetables include garlic, onions, broccoli, leafy greens, cauliflower, etc. As far as fruits are concerned, I am allergic to the ones high in free thiols, so no worries there. I will continue drinking meat stock, and strive to stay within the confines of GAPS because gut healing is still a very important factor in my healing protocol.

While I am eliminating several foods from my diet, I will also be adding foods. During the last two weeks, I have felt the Lord prompting me to try ghee (clarified butter) again. He just keeps sending me signals and information about ghee. God often speaks to me through repetition, so He has my full attention. On Wednesday, Dr. Yakaboski told me that a big part of getting well will be healing the mucous layer of my gut. Until I heal the mucous layer, probiotics will do me little good. If the probiotics aren't doing their job, I can't kill off the candida albicans, which inhibit gut healing. Foods that heal the mucous layer include ghee (I'm making some now, and I'm sure I will tolerate it!), ground flax and hemp seed, colloidal silver, slippery elm, marshmallow root, okra (yuck!) and sunflower lecithin.The plan is to add these food into my diet one a time every 3-4 days to be sure I can tolerate them. I am now keeping a food journal so I can track exactly what I'm eating and any reactions I may have.

Supplementation is in my future, but drastic dietary changes are enough to tackle at the moment. I will likely wait for my results to arrive and my consultation with the MTHFR specialist before worrying too much about supplements. I have enough to learn, absorb and implement for now anyway. Wouldn't you agree?

I covet your prayers at this time, especially prayers for my "inner man" (Ephesians 3:16). Ask the Lord to help me be aware of my dependence upon Him at all times. Ask that I will open myself to Him fully that He might fill me with His sweet Spirit. Ask for my protection against the Evil One and a wariness toward the weakness of my own flesh. Ask that He might grant me JOY, the real kind, the kind that can only be found in Himself. Ask Him for His continued clear guidance for my doctors and me. And give Him thanks in all things.

"Oh, that men would give thanks to the Lord for His goodness,
and for His wonderful works to the children of men!"
Psalm 107:8

Sources:

Roberts, James C., M.D. "Methyl Cycle NutriGenomics"

Connors, Kevin, D.C. Help, My Body is Killing Me. AuthorHouse, 2010

Tuesday, April 9, 2013

Thoughts on Jubilee

Maintaining a state of jubilee has been harder than I had imagined. It is difficult to live in mental, emotional and spiritual freedom when the walls of my world are continually closing in. It isn't easy to not think of myself as a sick and struggling mother when that is my reality on most days. It is almost impossible not to fixate on my symptoms when they are constantly changing, surprising me and even sometimes making me laugh at the strangeness of it all. On the other hand, it is an effortless thing to allow my mind to wander to the things I would like to be doing that I cannot do, to my disappointment that I am not the mother I desire to be and to my growing realization that getting better is going to be far more complicated than loosely following a diet for a couple of years.

When I first began the GAPS diet last September, I envisioned a slow and steady journey toward healing. I saw myself getting better and better until--voila! While I rejoice to report that my digestive symptoms have improved significantly during the last 7 months, the ground has unexpectedly crumbled beneath my feet in other ways. My environmental sensitivities continue to worsen. In addition to toxins, fragrances and latex, I have become violently allergic to peanuts. I came very close to going into anaphylactic shock on Sunday evening after attempting to make peanut butter for Micah. I simply breathed in peanut particles released from the garbage can and within a few minutes my body temperature dropped, my sinuses swelled shut and I was struggling for breath. Now, peanuts are banned from the house indefinitely, and life has become even smaller. Weirder, too--I have ordered a good-quality cotton mask to wear in public as a safety precaution. If you ever need a giggle, just imagine the thoughts of my fellow grocery shoppers. On the bright side, a mask may make occasional church attendance possible again.

If the only opposition to my efforts to live in liberty were physical, it is possible that I would be having more success. But we are whole people whose bodies, souls and spirits are all intricately intertwined. When one part of our make up is assaulted, the other areas suffer. If our entire composition is assaulted at once, it is only by the grace of God we stand.....or at least get back up again.

Jenny received disheartening news at her last two doctor's appointments. I know she is going to hate reading this, which is why I feel it necessary to remind her that I love her as my own soul. I can't separate the two anymore so it is impossible for me not to take her hard news personally. (So there! You can't be mad at me.) A couple of weeks ago, she was told that the chemo was no longer working. The liver tumors were larger. The cancer in her esophagus had returned, and it had spread to her lungs and stomach lining. Experimental medicine was considered, but last week she was released from the trial because they had run out of the smaller sized pills and Jenny could not swallow the larger ones. I will not for a moment pretend that the difficulty of the past few weeks has nothing to do with her circumstances. Jenny continues to amaze me by her capabilities in spite of constant pain and a grim prognosis. As she often reminds me, she still has today and God will provide her with breath until He is ready to call her home. I'm just afraid He's going to call her before I am ready to let her go. I know it won't be a goodbye--rather more like a "Bon voyage!" and an "I'll be along soon"--but I tremble when I anticipate the pain I fear is coming.

I have been under considerable duress physically and emotionally, so it follows that I would be affected spiritually. And I have been. I have felt distant from the God I so need, the God I so depend upon for everything from what to put on my daily to-do list to the strength to pull it off. I haven't liked it. With no way to fix myself, I asked Him to fix me for me. I searched His Word for answers. I  prayed. I quieted my soul so I could hear Him. When He was ready, He spoke--

"Let go. Trust me. Give thanks."

The message came to me in no less than five books I was reading at the same time over the course of three days. It came to me in emails, in conversations.

"Let go. Trust me. Give thanks."

I heard it in a podcasted interview online. I saw it on Facebook. It was spoken in a sermon.

"Let go. Trust me. Give thanks."

After several days of being pummeled by these instructions, I received this helpful hint--

"P.S. It's all tied together."
  
It was during a conversation with Jenny that I realized what had happened and was able to verbalize it. "You know?" I said. "I think my problem is that I am suddenly doubting God's goodness."

Now, I know God is good. I have known that since I was three. I have memorized Scripture passages teaching the theology. The cross proves it. Without thinking, several examples of God's goodness to me in particular come to mind. The truth of God's goodness is a part of my spirit's bone structure, but my soul had lost touch with my spirit's conviction in the midst of the day to day struggle of being me. Because I had lost touch with this truth, I was suddenly trying to place the circumstances in my life in an order that made sense to me. It wasn't working. I was becoming frustrated, feeling overwhelmed and getting sick....er.

I had to let go. I needed to trust God. I was called to give thanks. The three instructions are pretty interconnected. To let go, I have to trust. When I give thanks, it's easy to let go. When I'm trusting, I can clearly see God's goodness, and gratitude is a natural by-product of the process. But I couldn't start with letting go or trusting because I can't will myself to do either. However, I could will myself to give thanks. I didn't have to look far to find things for which to be thankful.

1) Jubilee Farm coming to life


 Thanks for the photo, Ann Marie!




2) Baking with babies




3) Sara's first egg hunt




4) Meeting Mr. Clarence, the precious man who provided me with goat's milk last summer when I could eat little else.  Mr. Clarence belonged to my Uncle David's congregation at Good Hope Baptist Church. He gave to me because he loves my uncle and our Lord.


 

5) The first planting and planting party at Jubilee Farm
 Our beautiful plants purchased from Yak's Farm on Hwy. 33




 Enjoying a tomato just a few minutes before getting stung by a wasp. Poor baby!


 Meet Rich who might as well already be a part of the family as Micah now asks for Auntie and Richie. :)


Only two and a half weeks after beginning my Gratitude List for 2013 (inspired by Ann Voskamp's book One Thousand Gifts) I have 45 gifts recorded in my journal. That's forty-five items that remind me that God is indeed very good and worthy of my trust. Forty-five items telling me I can let go.

Living in a state of jubilee is not pretending that life isn't hard or putting on a good face. Jubilee is saying, "God I trust You have our good at the center of Your plan" even when we can't make sense of things. It is looking at the world as a giant gift and life as a grand adventure. It is believing that life is still good even when it is painful. It is being able to say "thank you" when you are lying on a mattress only conscious enough to know that if you close your eyes for a moment you may wake up in Heaven. It is being able to pray as you are about to toss your cookies into the toilet. It is a peace that goes so deep that it doesn't matter if you never get well because healing isn't your real prize anyway. It is knowing that even if you lose a part of your soul, you'll get it back one day. Jubilee is Jesus, and that is something I always have and am never without.

Friday, March 22, 2013

How to Muscle Test and Relieve Allergy Symptoms

I have been planning this video blog for awhile now. I actually intended to post it much earlier, but circumstances would not allow for it. So here we are at my blog's 100th post, and I am entirely veering away from my usual style. 

If you are new here, know that my blog is not a health blog. Usually, it resembles a diary. Lately, I write almost exclusively about my journey to healing and what God is teaching me along the way. If you are interested in learning more about my illness, I suggest reading here, here and here

Making the videos was not easy. When we first began, I had difficulty keeping myself from giggling idiotically. Then, I made several frustrating mistakes. In some cuts, I plague the camera with nervous tics and verbal dyslexia. It was a mess! My attempts to order my thoughts and overcome my nervousness make my manner come across as cold and aloof. Oh, well! These were the best takes recorded before I ran out of patience and energy. The first video covers the topic of muscle testing and the second covers BioSET treatments. I hope the information, if not my sparkling on-camera personality (HA!), helps and blesses you and your families.

Disclaimer: This information is not to be used as a substitute for professional medical care, especially during cases of emergency. Practitioners trained in the BioSET system can be located throughout the country. I highly recommend locating a practitioner near you!
  `
Acknowledgments: Dr. Ellen Cutler, Dr. Carolyne Yakaboski and Dr. Melisa Kuehn. Dr. Yakaboski of West Monroe, Louisiana will be teaching a BioSET class coming soon! Please comment if you would like to receive more information concerning the class!

Special thanks goes to my husband, Brandon Keaster (aka Superman), who filmed the video, held my notes and performed the muscle testing and BioSET treatments.



Saturday, March 16, 2013

I Could Only Think of Eggs

I was unwell when I woke this morning. I had obviously caught my kids' cold, but I wasn't surprised. I catch every illness that enters our home these days. I moved slowly. I read Jesus Calling and pondered Psalm 90. At almost 11:00, I was ready for a light breakfast. I ate runny, scrambled eggs--organic, pastured eggs the Lord had so sweetly provided for me last week--and drank a cup of hot, rich chicken broth so my body could spend its energy on healing the cold rather than digesting the food. I took the supplements I continue to tolerate--cod liver oil, Vitamin D3 and my digestive enzyme. I scaled down my plans for the day, and decided to spend some time out in the sun. I was making good choices.....until I took a bite of the coconut-based brownie I made yesterday. 

I dressed Sara and the two of us joined the boys, both of whom were outside. Brandon was finishing his work on the porch he mostly built last weekend and Micah was "helping." I plopped down in the canvas chair almost doubling over from the stabbing pain directly below my sternum. I could tell that I would not get away with the slightest indiscretion on this day, a realization that should have directed me back indoors.

I tried to enjoy the breeze and the red glow the sun cast about my children's heads, but my intense stomach pain and discomfort from the cold prevented me. As the kids played and Brandon worked--measuring, sawing and drilling--an eerie feeling crept upon me. My head grew thick and my stomach tossed with nausea. My chest tightened and my limbs filled with lead. Drunk though I was, I saw the flecks of wood thrown by the saw and carried off by the wind, I remembered that the wood was treated (meaning the wood was toxic), and the Holy Spirit spoke within--Get inside.

Somehow, I managed to get myself and the kids in the house. I immediately turned on Mickey Mouse for the kiddos, and fell onto the couch. I felt so strange. I tried to monitor my own breathing, my only requirement was that it must continue. My body was just so heavy and wrong, and it almost seemed that my soul lifted out of it and hovered above the scene, waiting to see what would happen. I lost all sense of time. At one point, I thought, "Is this what dying feels like?" I never once thought I would actually die, but the question prompted me to croak to Micah--"Tell Daddy that I need his help."

Brandon made his way inside not knowing how poorly I was doing. I told him that I needed BioSet. He helped me up from the couch, and suddenly I was sputtering, choking and wheezing. I hobbled into the kitchen, leaning on him for support. Once there, he realized to make the BioSet treatment most effective, he needed to take a saliva sample with a cotton swab.....which we keep in the bathroom. He propped me upon the kitchen counter and walked away. My chest burned and ached. I struggled for breath, and was as drunk as a skunk from toxic exposure. My legs gave way. I hit the kitchen floor with a thud. I was only vaguely aware of the pain in my hip, shoulder and head from the fall. Brandon was suddenly by my side again with my inhaler. I cried involuntarily as I struggled to get a puff.

I never lost consciousness, but my awareness faded in and out. I heard words like "hospital," "Mama is sick, Baby," and "can you come over." I surrendered myself to whatever fate Brandon deemed necessary. I heard Sara crying, and knew she cried because she knew something was wrong with me. She always knows. I knew when he gave me the Acute Rescue (a.k.a. magic potion) drops. I was able to cooperate when he swabbed my mouth and rolled me over onto my stomach to perform BioSet. Otherwise, I could only lie there, sprawled out in the middle of my small kitchen floor, thinking of eggs--

Recently, my Papaw began bringing me some pastured eggs from a farmer friend of his. I have been eating eggs all along (except for those first few weeks when I couldn't eat anything), but these eggs are different. They taste better, are richer in color. I crave them at all meals and always feel better after eating them. So, I am eating a lot of them. I ran out while Papaw was in the hospital last week. His friend and supplier is a little odd and often drunk, so I couldn't just go get the eggs myself. Before leaving for Baton Rouge on Thursday, I packed a couple of empty egg cartons to take along. Dad asked me why I was bringing them. I told him that I was out of pastured eggs and if we saw some along the way, I would like to stop.

I have made the trip to Baton Rouge several times, and have never seen anyone selling eggs along the way, something I would have noticed because I look for such things. However, I knew that my body needed those eggs. I knew that God knew my body needed the eggs. Therefore, I believed it was quite possible, even likely, that I would find some.

I looked for a road sign the entire trip, and did not find one. After that, I honestly forgot about it. I went to my appointments, both of which were very beneficial. When I finished my massage, Dad was paying for something and a couple walked in carrying large grocery bags. Babette, my masseuse, swept back into the lobby. She greeted the couple and taking the bags from them, asked me if I would like to buy some eggs.

"They are fresh, organic and pastured and they come from happy chickens!" she smiled. My dad's face was priceless. He laughed out loud. I smiled and told her I had two empty cartons in the car and would love to buy some.

In childlike faith, I had packed those cartons, fully believing that God could provide the eggs my body so desired. And He did. It was as simple as that. And that was all I could think of as I drifted in and out of conscious thought.

But you must see that I wasn't really thinking of eggs. I was thinking of God's faithfulness. 

He has promised to supply all my needs in Christ Jesus (Phil. 4:19). On Thursday, He saw that I needed pastured eggs. He provided them. And He did it in a clever way so that His signature could clearly be seen. Many months ago, He gave me a much-needed promise that I would live through this hell so that I would continue to fight my way through it without giving up. Before I was born, he chose Brandon to be my husband because He knew I needed a Superman to save my sickly butt time and again, a man who had the strength to live this life without losing his mind or his love for me.

As Sara Groves sings in one of my favorite songs, "God has been faithful. He will be again."

After Acute Rescue drops, a couple of puffs on the inhaler and two rounds of BioSet, I dramatically improved. After a sinus rinse, a detox bath and fresh clothes, I stopped re-poisoning myself which is always a plus. I have improved a little more throughout the day. I am still occasionally wheezing and suffering from swelling and sinus pressure. I am hurt from my fall to the kitchen floor, and I feel toxic. But I am alive. Thanks to God and Superman.

This verse from Psalm 90 kept coming to me today--"Make us glad according to the days in which You have afflicted us; the years in which we have seen evil." (v. 15)

This life I currently live is a life of affliction, but God is going to do me one better than make me glad for as many days as I have suffered. One day, the breath I take will be my last. Even if I suffer every day until then, my suffering will all be swallowed up by never-ending gladness, by the joy of His abiding presence, never to be remembered again. Until then, I will feed on His faithfulness every moment, something I did quite literally this evening as I ate three of my delicious, nutritious, pastured eggs for dinner.



Thursday, March 7, 2013

Tears in the Kitchen (A Health Update)

Something has felt "off" for the last several weeks, a fact to which I alluded in my last post. I did not know what was wrong, and I did not know why it went wrong so I chose to ignore it, hoping I was mistaken. As usual, ignoring what my body was saying was a dumb move. I forced it to take a firm tone. When I ignored the firm tone, my body decided to yell. On Monday, after weeks of little, daily reactions, I suffered a severe allergic reaction to the supplements recommended by Dr. Cave to treat my MTHFR gene--all of them. The folic acid, the methylating powder and the B vitamins have all been rejected entirely.

While I could allow myself to be discouraged by this seemingly unfortunate turn of events, I am actually encouraged. In this, God has offered me very clear redirection on my health journey. Clarity is a valuable gift to the foggy of brain.

 I have noticed during the past few months that while some of my symptoms have improved (i.e. I can eat more than three foods now), others have spiraled out of control. For example, I get sick every time I leave my home. And sometimes I get sick staying at home. The world in which I live is full of substances that pose a threat to me. That burning pile of yard trash you drive by probably doesn't bother you, but it leaves me feeling like someone has me in a choke-hold. Birthday parties and clothes shopping are about equally dangerous. Both have put me in respiratory distress. No more dry-cleaning clothes or Styrofoam cups for me. I can't even visit my sister in her new home because the new building materials emit strong toxins that make me wish for death....and probably have the power to deliver it. I wish I was being dramatic. A healthy body does not notice these things. My body wails, laments and gnashes its teeth at them. Every time I leave my home, I am taking a risk. The risk isn't a question of whether or not I will get sick. Rather, it is a question of how sick I will get. Most of the time, the risks aren't worth taking, and I am increasingly earning the title of "Stay at Home Mom."

Something isn't right. It doesn't only have to do with my supplements. I just look at my body's rejection of them as the tool the Lord used to reveal another bend in the road.


Last weekend, the Lord propelled me into action when He introduced me to a new friend.  Caroline and I met on Facebook. (You can meet Caroline here.) She lives in a different part of the country, and is almost a decade younger than myself, but our symptoms are very similar. The main difference is that hers are worse. She is completely homebound and is currently able to eat only three foods. Sound familiar? She began GAPS about three years ago. Soon after, she began having some problems very much like the ones I am experiencing now.

We both still believe the GAPS diet to be a great healing tool. I will continue to follow most of the tenants of the diet. However, we are fighting multiple battles, and GAPS alone cannot win the war.

After chatting with Caroline and discussing my supplement problem with my natural doctor (who is currently taking a class on MTHFR/DNA snips), I feel that the Lord is leading me to look deeper into both the autoimmune and genetic natures of my illness. I just received my new DNA test kit in the mail. This new test will offer me more comprehensive results than the blood test ordered by Dr. Cave in October. From there, Dr. Yakaboski and I will have a phone consult with a genetic specialist. The three of us will discuss my results and formulate a new treatment plan. The consult will take place in a few weeks after I have received the new DNA results. I have also downloaded a free ebook by Dr. Connors, Caroline's doctor. The book discusses types of autoimmune-based illness and how to treat them. Dr. Connors also offers phone consultations to people who cannot travel to his clinic in Minnesota.

In the meantime, I am recovering from poisoning myself and trying to limit further poison exposure. I have seen Dr. Yakaboski twice this week to get relief. I hope that after today's colonic, BioSet and BEST treatments, I will soon experience a change for the better. I have no idea how I will do without being able to address my methylation problems for several weeks, but I will leave that in the hands of my Faithful God.

This God of mine has thoroughly earned my trust by proving Himself ready and able to help time and time again. Yesterday, He provided a friend to help me with my children and chores. Last night, He was there for me again. I was in the recliner, feeling as if I weighed 500 pounds and had lived 100 years. I was unsure if I was even going to be able to peel myself away from the chair to get my baby out of her crib.

But He reminded me, "My grace is sufficient for you." I stood.

I had vegetables to prep, broth to jar and a chicken to debone. I could not do it. He whispered, "My grace is sufficient."I began to chop, jar and debone.

It was too hard. I hurt too much. "My grace is sufficient, My Child."

I cried. I cried because it was hard and because God enabled me to do it anyway. "Sufficient. I AM enough. I will help you. I promise."

Tears of grace fell in my kitchen last night, and I knew. No matter how hard the rest of this healing journey may be, there will be enough grace--enough GOD--to bring me through.




Monday, March 4, 2013

The Top Five Reasons I Love Being Sick

No, I have not become a masochist.

In most ways, I loathe being sick. I despise pain, discomforts, social alienation, fatigue, and dietary restrictions, but my sickness is so much more than the sum of my symptoms. I have been thrust into an alien world. Now that I am no longer suffocating in an atmosphere my fragile lungs are not accustomed to, I find that I don't mind this strange, sometimes desolate planet so much. In fact, I can find things that I truly like about it. While I will never stop looking for a way to get back home, I have found a way to be happy here. Much of my happiness comes from this little list of blessings I could have only received in a place of long-term suffering:

1) The People

The book, Embracing Obscurity, mentions a "secret society" of sufferers. Initiation is hell, but there is a hidden sweetness to be found in all the bitterness of membership. In my earliest days of suffering, this community enveloped me as if I had been there forever. These people know. They understand. They have held me up. They always know exactly what to say and not say. It is comforting to look into an eye and find the same altered light I feel in my own, to hear another voice with inflections of pain and peace trying to find the right balance. The people here have taught me how to give comfort and receive it, the latter actually being the harder of the two. There is much more to learn. In most of the cases I have encountered, the people of the Suffering Planet grieve with those who grieve and rejoice with those who overcome, a rare, precious commodity these days. Sufferers, who are usually social outcasts, have become some of my favorite people. I am proud to be counted among them.

Without being sick, this kind of sick, I never would have met my fabulous team of natural/integrative doctors--Dr. Stephanie Cave, Dr. Melisa Kuehn, and Dr. Carolyne Yakaboski--because I would still think alternative medicine is all very "woo-woo!"I adore each one, but my favorite (and I can write this because none of them read my blog) is my local Natural Doctor, Dr. Yakaboski. Each doctor has her own pool of knowledge, making each one valuable and necessary to me. What is special about Dr. Yakaboski is that she sees me regularly, listens carefully to me and is taking time to learn about my peculiarities. I'm not saying that I'm the reason she is taking a class on genetic mutations, but I know my case at least offered her a nudge. And I'm beginning to think the information she is currently learning is the key to my healing.

While my illness has created distance in most of my longer-established friendships (not because of any person's fault--that is just what chronic illness does), I have made new friendships, none of which would exist without this illness. Some of them like Jenny, Caroline and Jennifer are or have been sick themselves. Oddly, not one of these ladies lives close by. Others like Emily Wheat and Emilea Talton, God just ushered in to help me along.

2) Personal Growth

When I married 8 1/2 years ago, I was a terrible cook who had never shown much interest in the kitchen. I could scramble eggs, make awesome cinnamon toast and kill perfectly decent food on the George Foreman grill. (If you own this appliance, please do your part to stop the murder of innocent food. Divorce George. Fat is your friend.) While mistakes occasionally still happen, I consistently deliver a good meal made from scratch night after night, and most of the recipes are Melissa Keaster originals. When you can't eat out and people can't cook for you, your only choice is to cook or starve. Thereby, I get lots of practice, and practice has made me quite competent. I'm even tweaking an original "real food" cookie bar recipe.

 I get a huge kick out of making a pretty wide range of yummy food for my family. I am proud of the accomplishment that was born out of very real struggle. It is hard work--both the planning and the preparing! Cooking a different meal every night without a repeat over the course of the week using only 30ish foods while battling pain and fatigue is a real challenge! I suppose it's a good thing that I've always liked challenges.


In addition to learning to cook, I have learned to nourish. Many of my preconceived ideas about health food have been shattered, and I am watching my family benefit from what I have learned. I have discovered that I love feeding people good food. Right now, I have a very real ministry of feeding three eaters in addition to myself, but I dream of a quiet, thriving ministry of feeding and visiting sick people and shut-ins once I am well.

3) Helping Others

I have learned so much information since losing my health. I have an infinite amount more to learn, but I am helping family, friends and strangers alike with the little I already know. I have shown several people how to muscle test for allergies to foods before trying them. If my friends want a natural remedy for some kind of ailment, I either know the remedy or know how to find it. Brandon, the kids and other friends and family who haven't minded being my guinea pigs have benefited from BioSet treatments.

Mostly, I am thankful that I am able to help my immediate people. Brandon has Crohn's disease. While he complains of his weight loss from time to time, he looks great and feels even better. My children both struggle with my genetic mutation and Gut and Psychology Syndrome. I will even go as far as to say that I think I am going to save Sara from becoming autistic. Some of you may think I'm talking crazy, but I have been doing lots of reading and have personally witnessed or experienced the truth of the information. I love that I am in the unique position to see that my kids are sick and need my help while they are still young. Soon, I will be healthy enough to put the necessary energy into getting them better. What an undeniable gift!

4) Spiritual Growth

I have learned to view this new life as a grand adventure. I may rarely leave my home, but no two days are the same. Each one begins brimming with promise. I never know who will walk through my door, who will call, who I will meet, what my children and husband will need, or what God will speak to me on any given day.

I am finally learning a little about the ministry of intercessory prayer. It is truly a labor of the soul. As Christians, we are nourished by the Word of God and we sweat by the work of prayer. Sometimes, this ministry is painful for me because my suffering has made me more compassionate. Friend, if you share a burden of your soul with me, know that I feel a little of its weight. If something has wounded you, I bleed a little, too. I feel your injustice almost as if it were my own. Tears for your sorrow stain the side of my bed. I have been asking the Lord to teach me how to pray for years. It is harder than I had anticipated, but it is work worth doing.

I see people. I am finally looking others in the eye, observing either light or shadow. I want to know hearts. I have time for souls. I want to know how I can meet the needs of body, soul and spirit. This is especially true for my immediate people--Brandon, Micah and Sara. They are my focus now, as it should be.

The most important lesson I'm learning is contentment. Contentment is a difficult and victorious classroom. I can be happy when I'm hungry, when I'm tired, when I hurt, when I'm lonely, when I'm sick, when I'm scared and when my feelings have been hurt if I look to God for joy. I don't do this perfectly or anywhere close, but I am learning. If I live to old age, I hope to say with the Apostle Paul, "I have learned to be content in all things."

5) GOD

Spurgeon's Morning by Morning reads thus on February 12--

"Here is a blessed proportion. The Ruler of providence bears a pair of scales--in this side He puts His people's trials, and in that He puts their consolations. When the scale of trial is nearly empty, you will always find the scale of consolation in nearly the same condition. When the scale of trial is full, you will find the scale of consolation just as heavy. When the black clouds gather most, the light is more brightly revealed to us....Another reason why we are often most happy in our troubles is this--then we have the closest dealings with God. When the purse is bursting with gold, we try to do without so much prayer. But take our food away, and we want our God.....Troubled believer, do not fret over your heavy troubles, for they are the heralds of weighty mercies." [2 Corinthians 1:5]

Upon the stillness of my sickbed, I have often heard the voice of God. I feel His embrace when I ache. I know what the shadow of His wings is like. The sweetness there is so intense that sometimes I feel that I don't want to get well because I want to stay there forever. I have to shake myself, pry myself away, reminding myself that He is not calling me to enter into His rest just yet. I have to toil a little longer, and there is much joy to be found in my toil.

 More than anything, I love the nearness of Christ in my suffering. If you do not know Him today, Fellow or Future Sufferer, I hope you will. As John Piper writes at the end of His poem, "Job"--"Unkindly has He kindly shown me God." The price has been high, but seeing God is everything to me. It is the treasure for which I would sell everything I possess. Take my health, and give me Jesus!

I am certain that healing is in God's plan for me. He has told me over and over that I will get well. Currently, some of my symptoms are getting worse. Some days I feel that I am making a downward turn. But I trust His word to me. I believe Him. I will continue to believe Him if I temporarily take a turn for the worse. And I will never resent this place I'm in. I hate it, but I love it. Because God is with me, it is a fine place to be.